FACS Association
Fetal Anti-Convulsant syndromeWelcome to our website. FACSA is a support group for families and children who have been affected by AEDs during pregnancy and have a diagnosis of FACS Syndrome (FVS)
I start by thanking the Backbench Business Committee, on behalf of the all-party parliamentary group on valproate and other anti-epileptic drugs in pregnancy, for facilitating this debate. I also pay tribute to Janet Williams and Emma Murphy, who are present today. They have fought tirelessly on this cause over many years, and we owe them an enormous debt of gratitude.
Site Overview
Our Key Pages
This site will include a lot of information, here are some shortcuts to some of the main things you may be looking for. If you are looking for something else try the SiteMap
What is FACS?
Fetal Anti Convulsant syndrome is an Umbrella Term for a host of different Epilepsy medications taken during pregnancy that have had an effect on the baby in Utero.
SODIUM VALPROATE GUIDELINES
New warnings and guidance on prescribing sodium valproate to girls and women with epilepsy have been issued by the MHRA (Medicines and Healthcare Products Regulatory Agency).
USEFUL RESOURCES
Download our Educational Materials for you to print. If you would rather receive free original copies please contact us
CONTACT US
Please get in touch if you have any questions, information, want to know more, or if you would like original documents sent to you by email
ABOUT US
Who are we? Two humble ladies trying to make a big difference. Find out more about us here
Media
Some of the Places we have been featured in
Blog
Latest News, Information & Updates
Ireland – Inquiry on Valproate ‘Not required at the moment’
This is a devastating blow for the Irish Valproate Campaign. It took us months of work at The National Archives going through hundreds of files and thousands of papers to find the Government evidence on Valproate. Without these documents we now have with our...
Update on our downloads
Our downloadable and printable leaflets and information booklets are now available on the website.
Valproate Stakeholder Network Meeting
Following last weeks Valproate Stakeholder Network meeting, we contacted Andrew Dillon Chief Executive of NICE (Clinical guidelines) as we were under the assumption that the current NICE guidelines did NOT include the new PREVENT programme for Sodium Valproate. Today...
New Research From Denmark
A new research out from Denmark confirms all AED's are associated with Neurodevelopmental problems when used in pregnancy. We have said this for the last 6 years of Campaigning, Action now needs to be taken from MHRA.
About Our Founders
We won’t stop fighting
Janet Williams and Emma Murphy founded FACSA in 2012 after the collapse of Product Liability Litigation against Sanofi. Their aim was to represent affected families in the UK and implement change with regards to the prescribing of Sodium Valproate and to ensure justice for those affected by the medicine and to be the main port of call for families harmed by Epilepsy medicines.
Both Janet and Emma have Epilepsy and children affected and diagnosed with Fetal Valproate Syndrome
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